» Coffin-Lowry Syndrome Foundation Non-profit organization and international support group. Available in English, French and Spanish. http://clsf.info
» NINDS: Coffin Lowry Syndrome Information sheet compiled by the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/coffin_lowry/coffin_lowry.htm
» NORD: Coffin Lowry Syndrome General information about this syndrome, its alternative names and further resources. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Coffin%20Lowry%20Syndrome