» Ectodermal Dysplasia Society    Information about the organization as well as the ED condition. Includes links, news articles and contact details.    http://www.ectodermaldysplasia.org/

» NORD: Ectodermal Dysplasias    Offers synonyms, a general discussion and resources.    http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ectodermal%20Dysplasias

» National Foundation for Ectodermal Dysplasia    ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.    http://www.nfed.org/

» The Andy Fund    Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.    http://www.andy.org.mx

» The CaF Directory    Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing.    http://www.cafamily.org.uk/Direct/e14.html

» The Ectodermal Dysplasia Mailing List    Includes instructions on joining the list, FAQs and links to further resources.    http://hometown.aol.com/charliein/ed/home.html