» Freeman-Sheldon Parent Support Group    Includes a members-only area with a bulletin board and pictures of afflicted children.    http://www.fspsg.org/

» Freeman-Sheldon Syndrome - Wikipedia    Detailed description of incidence, nosology, inheritance, and condition management.    http://en.wikipedia.org/wiki/Freeman-Sheldon_syndrome

» Geneva Foundation for Medical Education and Research    Several pictures of children with typical FSS characteristics.    http://www.gfmer.ch/genetic_diseases_v2/gendis_detail_list.php?cat3=358

» National Craniofacial Association    Summarizes the child's likely needs, and has links to other resources.    http://www.faces-cranio.org/Disord/Freeman.htm

» Online Mendelian Inheritance in Man    Describes many case reports of FSS (also known as whistling face windmill vane hand syndrome), with references and a summary of the state of knowledge of the genetics.    http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=193700