» A Diary about Marfan's    Marfan's patients diary of the diseases events in her life. Includes a list of links.    http://www.angelfire.com/ms2/CysticFibrosisMarfan/standingtall.html

» American Heart Association - Marfan's Syndrome    Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.    http://www.americanheart.org/presenter.jhtml?identifier=4672

» Canadian Marfan Association    Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.    http://www.marfan.ca/

» International Federation of Marfan Syndrome Organizations    A global information center providing links to Organizations around the world.    http://www.marfanworld.org/

» Life and Issues of Marfan's Syndrome    Personal site by which describes the pathology and gives a bit of advice.    http://www.io.com/~cortese/marfan/

» Living With Marfans    This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.    http://jrmarfan58.com

» MFS Type 1 Fibrillin Gene    Major resources listed as well as genetic information.    http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=154700

» Marfan Association UK    The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.    http://www.marfan.org.uk

» Marfan Support and Information    Support group in New South Wales, Australia.    http://www.marfan.net.au

» Marfan Syndrome    Online chapter from The Merck Manual of Medical Information.    http://www.merck.com/mmhe/sec23/ch279/ch279c.html

» Marfan Syndrome Forum    Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.    http://hometown.aol.com/bjthaler6/myhomepage/

» Marfan Syndrome: Does Diet Play a Role    Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.    http://www.ctds.info/marfan.html

» Marfan-List    Information about an e-mail mailing list. Also includes links to other online support groups.    http://marfanlife.net/lists/

» Marfans Research Foundation    Irish charity with information on fund raising activities and the condition.    http://www.marfansresearchfoundation.ie

» National Marfan Foundation    Providing accurate and timely information about the disorder to patients, family members and physicians.    http://www.marfan.org/

» Polish Marfan Association    General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.    http://www.marfan.sprint.pl/

» Questions and Answers about Marfan Syndrome    From the National Institutes of Health.    http://www.niams.nih.gov/Health_Info/Marfan_Syndrome/default.asp

» Slovak Marfan Association    The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.    http://marfan.szm.sk

» South African Marfan Syndrome Organisation    Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.    http://www.marfan.org.za

» Swedish Marfan Association    Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.    http://user.tninet.se/~sda301a/

» The Mystery of Akhenaten: Genetics or Aesthetics?    A history of the pharaoh along with theories applied to what he may have had, including Marfan's.    http://www.heptune.com/Marfans.html

» Univ. of Washington - Marfan Syndrome    What the disease is and includes the impacts on daily life.    http://www.orthop.washington.edu/arthritis/types/marfan/01

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