» IFOPA - International Fibrodysplasia Ossificans Progressiva Association    Support group for families. Information about the condition, treatment, and research efforts.    http://www.ifopa.org/

» McKay Orthopaedic Research Laboratory    Summaries of current research projects at the University of Pennsylvania.    http://www.uphs.upenn.edu/orl/research/fop/

» SFGate    San Francisco Chronicle article describes the disease, includes anecdotes about the lives of several patients.    http://sfgate.com/cgi-bin/article.cgi?file=/c/a/2005/05/31/BONES.TMP