» Gorham's Disease or Massive Osteolysis Supporting those affected by this rare condition. From the AFAS Association. Available in English, French, and Spanish. http://www.gorhams.org/gorhams_disease_en.htm
» Jake Moore Memorial Site Personal page about a young man who had vanishing bone disease. Offers a support forum. http://www.jakemoore.org
» The Lymphangiomatosis Foundation Organization working on finding a cure for lymphangiomatosis and Gorham's disease through research, fundraising, and education. http://www.lymphangiomatosis.org/
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