| |
|
 |
|
» A Guide for Parents 
This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
http://www.mda.org.au/Information/Publications/Guide/mdaguide.asp
|
 |
|
» DMD Information 
Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
http://www.angelfire.com/band/teja/index_dmd.html
|
 |
|
» DMD Pioneers 
Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
http://www.dmdpioneers.org/
|
 |
|
» FSH-MD Support Group 
Provides support for those with Facio Scapulo Humeral and their carers.
http://www.fsh-group.org/index2.html
|
 |
|
» Living For Today, Preparing For Tomorrow 
Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
http://www.livingfortoday.org
|
 |
|
» MDA Ride For Life 
Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
http://www.mdarideforlife.org/
|
 |
|
» Muscular Dystrophy 
Details about Nectar "T", not a cure for MD, but aims to delay its progress, gaining valuable time until the medical community will solve the problem permanently. Multilingual site.
http://www.musculardystrophy.gr/
|
 |
|
» Muscular Dystrophy Campaign 
Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
http://www.see-search.com/musculardystrophycampaign.htm
|
 |
|
» NINDS Muscular Dystrophy Information Page 
Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
http://www.ninds.nih.gov/disorders/md/md.htm
|
|