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Friedreich's Ataxia
   
   
   


http://cajunheart.tripod.com   » CajunHeart Open in a new browser window
   Kim Bourg describes her life with the condition, and suggests strategies for coping with it in oneself or others. Includes details of symptoms and diagnosis.
   http://cajunheart.tripod.com

http://www.fara.org.au/   » Friedreich Ataxia Research Association Open in a new browser window
   Summarises recent progress in ataxia research and the search for better treatment.
   http://www.fara.org.au/

http://www.ninds.nih.gov/disorders/friedreichs_ataxia/detail_friedreichs_ataxia.htm   » Friedreich's Ataxia Fact Sheet Open in a new browser window
   A resources guide and fact sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
   http://www.ninds.nih.gov/disorders/friedreichs_ataxia/detail_friedreichs_ataxia.htm

http://www.fortnet.org/fapg/   » Friedreich's Ataxia Parents Group Open in a new browser window
   With advice for new parents on the disease, and on how the parent might better cope emotionally.
   http://www.fortnet.org/fapg/

http://www.faresearchalliance.org/   » Friedreich's Ataxia Research Alliance Open in a new browser window
   Non-profit organization dedicated to the pursuit of scientific research leading to treatments and a cure.
   http://www.faresearchalliance.org/

http://www.ataxia.ie/   » Friedreichs Ataxia Society Ireland Open in a new browser window
   Voluntary organisation providing support to anyone affected by genetic ataxias. Includes events calendar, membership details, and information on accessibility issues.
   http://www.ataxia.ie/

http://www.geneclinics.org/profiles/friedreich/   » GeneClinics: Friedreich Ataxia Open in a new browser window
   An in depth look at this disorder. Includes a summary, diagnosing, molecular genetic testing, clinical description and management.
   http://www.geneclinics.org/profiles/friedreich/

http://www.matthewlaw.co.uk/   » Matt's Mansion Open in a new browser window
   Describes his life with the condition, and his travels in a wheelchair. Includes information for any disabled person considering foreign travel.
   http://www.matthewlaw.co.uk/

http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ataxia,%20Friedreich's   » NORD: Friedreich's Ataxia Open in a new browser window
   Offers the synonyms, a general discussion and further resources.
   http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ataxia,%20Friedreich's

http://www.notgoingquietly.com   » Not Going Quietly Open in a new browser window
   A personal account of diagnosis, daily life, challenges, and international travel. Includes details of treatments, and a photograph gallery.
   http://www.notgoingquietly.com

http://news.bbc.co.uk/2/hi/health/5257252.stm   » Patient loses right-to-food fight Open in a new browser window
   The BBC reports that a man with Friedreich's ataxia has lost the last stage of his legal fight to insist on his being fed artificially in the final stages of his life.
   http://news.bbc.co.uk/2/hi/health/5257252.stm

http://www.achaf.org/   » Swiss Association of Friedreich Ataxia Open in a new browser window
   Parents and friends of patients campaigning for better treatment for ataxics in Switzerland; also sharing news and information about the condition and current research.
   http://www.achaf.org/



   
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Last Updated: 2008-05-09 06:15:13
 
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