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» CajunHeart 
Kim Bourg describes her life with the condition, and suggests strategies for coping with it in oneself or others. Includes details of symptoms and diagnosis.
http://cajunheart.tripod.com
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» Friedreich's Ataxia Fact Sheet 
A resources guide and fact sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/disorders/friedreichs_ataxia/detail_friedreichs_ataxia.htm
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» Friedreichs Ataxia Society Ireland 
Voluntary organisation providing support to anyone affected by genetic ataxias. Includes events calendar, membership details, and information on accessibility issues.
http://www.ataxia.ie/
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» GeneClinics: Friedreich Ataxia 
An in depth look at this disorder. Includes a summary, diagnosing, molecular genetic testing, clinical description and management.
http://www.geneclinics.org/profiles/friedreich/
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» Matt's Mansion 
Describes his life with the condition, and his travels in a wheelchair. Includes information for any disabled person considering foreign travel.
http://www.matthewlaw.co.uk/
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» NORD: Friedreich's Ataxia 
Offers the synonyms, a general discussion and further resources.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ataxia,%20Friedreich's
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» Not Going Quietly 
A personal account of diagnosis, daily life, challenges, and international travel. Includes details of treatments, and a photograph gallery.
http://www.notgoingquietly.com
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» Patient loses right-to-food fight 
The BBC reports that a man with Friedreich's ataxia has lost the last stage of his legal fight to insist on his being fed artificially in the final stages of his life.
http://news.bbc.co.uk/2/hi/health/5257252.stm
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» Swiss Association of Friedreich Ataxia 
Parents and friends of patients campaigning for better treatment for ataxics in Switzerland; also sharing news and information about the condition and current research.
http://www.achaf.org/
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This category needs an editor Last Updated: 2008-05-09 06:15:13
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